tag:blogger.com,1999:blog-4272876481008402838.post8061656879155375628..comments2023-10-30T07:21:35.030-07:00Comments on Living with a Desmoid Tumor: My Ongoing Story: Starting ChemoMikehttp://www.blogger.com/profile/13690745722683865809noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-4272876481008402838.post-30924439278097403552014-03-10T18:44:07.937-07:002014-03-10T18:44:07.937-07:00Were is it exactly? Mine on my neck and I'm ha...Were is it exactly? Mine on my neck and I'm having surgery on April. Thanks.Anonymoushttps://www.blogger.com/profile/14345622336967483435noreply@blogger.comtag:blogger.com,1999:blog-4272876481008402838.post-91083797924349787342012-04-27T23:03:20.602-07:002012-04-27T23:03:20.602-07:00I've come across your blog a few times and am ...I've come across your blog a few times and am always hoping for an update....?..<br /><br />My desmoid was surgically resected in July 2009, so I am well-aware at how tough the road is to battle one of these beasts.<br /><br />Anyway - I'd love to hear more and hopefully it will be great news on how you beat this ugly tumor!mama2duke&beckhttps://www.blogger.com/profile/09683521733208912811noreply@blogger.comtag:blogger.com,1999:blog-4272876481008402838.post-86932974394645395252009-01-13T08:53:00.000-08:002009-01-13T08:53:00.000-08:00I've been living with a Desmoid Tumor for 4 years ...I've been living with a Desmoid Tumor for 4 years (that I know of). Because of the location and size chemo and radiation has been ruled out. Surgical removal is out as well because of the damage to the nerve network it would cause. Besides, they say it would probably just grow back. Nasty buggers these tumors, eh?windsonghttps://www.blogger.com/profile/02430754050083858362noreply@blogger.comtag:blogger.com,1999:blog-4272876481008402838.post-83029750809967851792008-07-08T13:06:00.000-07:002008-07-08T13:06:00.000-07:00My thoughts and prayers are with you as you start...My thoughts and prayers are with you as you start your chemo. I am in the Northwest as well and have been through what you are about to start as well as many other treatments. If you ever need a fellow desmoidian to talk to please feel free to email me!<BR/>LauraLaurahttps://www.blogger.com/profile/12741500715985767732noreply@blogger.com